A trust that holds money for a person with a disability without disqualifying them from SSI and Medicaid, the difference between first-party and third-party trusts, and the ABLE account alternative.
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Supplemental Security Income and Medicaid are means-tested: a person with more than a small amount of countable resources loses eligibility. An inheritance, a lawsuit recovery or a gift left directly to a person with a disability can therefore cost them the benefits they depend on, often including the Medicaid coverage that pays for long-term services. A special needs trust (also called a supplemental needs trust) holds the money instead, managed by a trustee, so it is not counted as the beneficiary's resource while still being used for their benefit.
There are two basic kinds. A third-party trust is funded with someone else's money, typically parents or grandparents through their wills, living trusts or beneficiary designations; when the beneficiary dies, what remains passes to whoever the trust names. A first-party (self-settled) trust holds the disabled person's own money, such as a personal injury settlement or back benefits. Federal law allows it only for a person under 65, established by the person, a parent, grandparent, guardian or court, and it must repay the state Medicaid program from what remains at death. A pooled trust run by a nonprofit is a further option for first-party funds, with separate accounts managed together.
How the trustee spends the money matters as much as how the trust is written. Distributions paid directly to providers for things such as medical care not covered by Medicaid, education, therapy, equipment, travel and recreation generally do not reduce benefits; cash given to the beneficiary does, and payments toward housing can reduce SSI. An ABLE account is a simpler tax-advantaged alternative for a person whose disability began before an age limit set by statute (raised by Congress for 2026): the beneficiary can control it, and it can pay housing costs, but contributions are capped each year. Many families use both. See also SSI and living trusts.
Use a lawyer who drafts special needs trusts regularly (often an elder law or special needs planning attorney): a trust missing the required terms, or a settlement paid to the beneficiary before the trust exists, can cost eligibility that takes months to restore. Parents should also update their wills and beneficiary designations so nothing passes to the child outright. If a lawsuit settlement is involved, have the trust lawyer and the injury lawyer coordinate before the settlement is signed.
Worried about the cost? A lawyer can be hired for one part of a case only (limited-scope representation), may be paid from what a claim recovers (contingency fee), or may be free through a pro bono program or legal aid; a court can also waive its own filing fees.
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